SAQOL


What is the SAQOL-39g?

The SAQOL-39 is a health related quality of life measure. It is an adapted version of the Stroke-Specific Quality of life scale (SS-QOL, Williams et al., 1999).

It is a self-report measure for people with stroke and aphasia, typically administered with the help of an interviewer.

Who is the SAQOL-39g suitable for?

The SAQOL-39g is applicable to people who have experienced a stroke, including people with aphasia. It can be used with people with any severity of expressive aphasia. For people with receptive aphasia, we have established that those with a score of ≥ 7/15 on the receptive domains of the FAST (Enderby et al., 1987) (moderate or mild receptive aphasia) are able to self-report reliably on the SAQOL-39 (Hilari et al., 2001; 2003).

Who can administer the SAQOL-39g?

It has been designed to be administered by researchers or clinicians who have experience of working with people who have had a stroke. It is intended to be interviewer administered with people with aphasia. This way people with receptive aphasia can benefit from a multi-modal presentation, i.e., they can both read and listen to the questions. People with expressive aphasia can just point to their responses.

Download Resources for SAQOL-39g

Download the SAQOL standard interviewer format below.

In interviewer format, the person with stroke is presented with pages of the test book and the interviewer notes down their responses on the score sheet.

Full details are provided in the administration guide.

Image of SAQOL Administration Guide
Image of SAQOL Presentation Form
Image of SAQOL Scoring Form

SAQOL-39g Online

You can take the SAQOL test online here. To get started click the button below.

It is important that you have first read the Administration Guidelines before undertaking the Online Assesment for the first time.

Image of SAQOL Administration Guide
Image of SAQOL Online Test Front Page

References:

All relevant publications for this research group are available through both Research Gate and Open Access. Links to individual papers can be found below.

Psychometric Properties of the SAQOL

Hilari K and Byng S. Measuring quality of life in people with aphasia: the Stroke Specific Quality of Life Scale. Int J Lang Commun.Disord. 2001;36 Suppl:86-91. Download this paper: Research Gate, Open Access

Hilari K, Byng S, Lamping DL, & Smith SC. The stroke and aphasia quality of life scale-39 (SAQOL-39): evaluation of acceptability, reliability and validity. Stroke. 2003; 34(8): 1944-1950. Download this paper: Research Gate, Open Access

Hilari, K., Lamping, D. L., Smith, S. C., Northcott, S., Lamb, A. & Marshall, J. (2009). Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population. Clinical Rehabilitation, 23(6), pp. 544-557. doi: 10.1177/0269215508101729. Download this paper: Research Gate, Open Access

Modes of Administration

Caute, A., Northcott, S., Clarkson, L., Pring, T. and Hilari, K. (2012). Does mode of administration affect health-related quality-of-life outcomes after stroke? Int J Speech Lang Pathol . doi:10.3109/17549507.2012.663789. Download this paper: Research Gate, Open Access

Alternative Versions – Proxy and Self-report Agreement

Hilari, K., Owen, S. and Farrelly, S.J. (2007). Proxy and self-report agreement on the Stroke and Aphasia Quality of Life Scale-39. Journal of Neurology, Neurosurgery and Psychiatry, 78(10), pp. 1072–1075. Download this paper: Research Gate, Open Access

How to Cite:

When reporting use of the SAQOL-39g, please cite the following:

“Hilari, K., Lamping, D. L., Smith, S. C., Northcott, S., Lamb, A. & Marshall, J. (2009). Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population. Clinical Rehabilitation, 23(6), pp. 544-557. doi: 10.1177/0269215508101729”

(Free download of this article available here)

When reporting use of the SAQOL-53 and the SAQOL-39, please cite the following:

“Hilari K, Byng S, Lamping DL, & Smith SC. The stroke and aphasia quality of life scale-39 (SAQOL-39): evaluation of acceptability, reliability and validity. Stroke. 2003; 34(8): 1944-1950.”

(Free download of this article available here)

Translations

Language Contact Reference
Chinese Lu Lu Lochia Chang, L. L. (2010). Correlation factors of the health-related quality of life in patients with chronic aphasia due to stroke (in Abstracts second Asia–Oceanian conference of physical and rehabilitation medicine) [Abstract]. Journal of Rehabilitation Medicine, 42(6) 30-204. (open access)
Chinese – Singapore Yiting Emily Guo Guo, Y. E., Togher, L., Power, E., & Koh, G. C. (2016). Validation of the Stroke and Aphasia Quality of Life Scale in a multicultural population. Disability and rehabilitation, 38(26), 2584-2592. (open access)

Guo, Y. E., Togher, L., Power, E., Heard, R., Luo, N., Yap, P., & Koh, G. C. (2017). Sensitivity to change and responsiveness of the Stroke and Aphasia Quality-of-Life Scale (SAQOL) in a Singapore stroke population. Aphasiology, 31(4), 427-446. (not open access)

Dutch – Belgian Eric Manders Manders, E., Dammekens, E., Leemans, I., & Michiels, K. (2010). Evaluation of quality of life in people with aphasia using a Dutch version of the SAQOL-39. Disability and rehabilitation, 32(3), 173-182. (not open access)
Dutch – Netherlands Lizet van Ewijk van Ewijk, L., Versteegde, L., Raven-Takken, E., & Hilari, K. (2017). Measuring quality of life in Dutch people with aphasia: development and psychometric evaluation of the SAQOL-39NL. Aphasiology, 31(2), 189-200. (open access)
Greek Eva Efstratiadou Efstratiadou, E. A., Chelas, E. N., Ignatiou, M., Christaki, V., Papathanasiou, I., & Hilari, K. (2012). Quality of life after stroke: evaluation of the Greek SAQOL-39g. Folia Phoniatrica et Logopaedica, 64(4), 179-186. (open access)

Kartsona, A., & Hilari, K. (2007). Quality of life in aphasia: Greek adaptation of the stroke and aphasia quality of life scale-39 item (SAQOL-39). Eura Medicophys, 43(1), 27-35. (open access)

Hindi Gopee Krishnan Mitra, I. H., & Krishnan, G. (2015). Adaptation and validation of stroke-aphasia quality of life (SAQOL-39) scale to Hindi. Annals of Indian Academy of Neurology, 18(1), 29. (open access)
Italian Lucio Posteraro Posteraro, L., Formis, A., Bidini, C., Grassi, E., Curti, M., Bighi, M., … & Franceschini, M. (2004). Aphasia quality of life: reliability of the Italian version of SAQOL-39. Europa medicophysica, 40(4), 257-262. (not open access)
Japanese Akane Kamiya Kamiya, A., Kamiya, K., Tatsumi, H., Suzuki, M., & Horiguchi, S. (2015). Japanese adaptation of the stroke and aphasia quality of life scale-39 (SAQOL-39): comparative study among different types of aphasia. Journal of Stroke and Cerebrovascular Diseases, 24(11), 2561-2564. (open access)
Kannada S. Kiran Kiran, S., & Krishnan, G. (2013). Stroke and aphasia quality of life scale in kannada-evaluation of reliability, validity and internal consistency., Annals of Indian Academy of Neurology, 16(3), 361-364. doi:10.4103/0972-2327.116932 (open access)
Malayalam Gopee Krishnan Raju, R., & Krishnan, G. (2015). Adaptation and validation of stroke-aphasia quality of life (SAQOL-39) scale to Malayalam. Annals of Indian Academy of Neurology, 18(4), 441. (open access)
Portuguese Inês Tello Milheiras Rodrigues Rodrigues, I. T., & Leal, M. G. (2013). Portuguese translation and psychometric properties of the Portuguese version of the Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39). Audiology-Communication Research, 18(4), 339-344. (open access)
Spanish M. C. Lata-Caneda Lata-Caneda, M. C., Pineiro-Temprano, M., Garcia-Fraga, I., Garcia-Armesto, I., Barrueco-Egido, J. R., & Meijide-Failde, R. (2009). Spanish adaptation of the Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39). European journal of physical and rehabilitation medicine, 45(3), 379-384. (not open access)
Turkish AyŞin Noyan-ErbaŞ AyŞin Noyan-ErbaŞ & Bülent Toğram. (2016). Stroke and aphasia quality-of-life scale-39: Reliability and validity of the Turkish version. International journal of speech-language pathology, 18(5), 1-7. doi:10.3109/17549507.2015.1126641 (open access)